I am sitting typing this on my computer at 11.50pm at night because I couldn’t sleep. My mind is filled with so many things I want to share with you.
I am so sorry that this awful disease is shortening your life.
I’m so sorry that there isn’t a cure yet, If I was a scientist, I would spend every waking hour trying to find one.
I don’t know what it feels like to be you, but I do know (in some degree) what it feels like to be your child. My Dad died when I was five years old from a brain tumour. This life you have now is nothing like you had imagined but you have been given one precious gift and that is time (however long or short they may be).
I can only imagine you love your children more than life itself and would do anything to make them happy. I understand that depending on the age of your child their understanding of what is happening will be different. Be completely honest with them. Children are way smarter than what we give them credit for.
With this precious time, you have left you have the opportunity to give your children some amazing gifts – these are gifts that will stay with them for life.
Some precious gifts you can leave for your children:
You may be looking at this list and feeling a little overwhelmed. Please don’t be. Call on your family and friends to help you if you need. If you don’t want to do all of them that is totally fine. I am begging you though, please don’t say its all too hard and do nothing. These suggestions above will be treasured beyond measure by your child.
Depending on the age of your child some of these things might not be so relevant now but I promise you as they get older their meaning and power will grow exponentially.
Your life matters. Although you may not be physically with them as they continue to journey through life you will always have a very big piece of their heart and nothing will ever change that.
Sending out lots of love.
I am thinking of you and your family. Please reach out if I could do anything to help.
If you are looking for a journal that allows you to write down many of the ideas listed above, please check out Cherish – A Book About Us (It was created in memory of my Dad, Greg)